Helpless doctors, parents studying and treating children themselves
Upon seeing the inability of scientists, the Terry family had a bold decision. She and her husband wanted to study for themselves how to solve their illness.
Browse ScienceInfo articles and explainers related to Rare Disease.
87 published items.
Upon seeing the inability of scientists, the Terry family had a bold decision. She and her husband wanted to study for themselves how to solve their illness.
The strange disease makes people unable to stand upright, but is forced to crawl if they want to move.
Part of the reason many pathologies become so scary is that doctors cannot accurately identify the symptoms of the disease and give it a proper name.
Buerger disease mainly occurs in men who are addicted to drugs, which leads to skin tissue damage, even necrosis, to the point of need.
Grace Gilbert (USA) born with a hairy body and grew up with a red beard longer than 45cm made medicine so far unable to find an answer.
People with an identity disorder of the body are always obsessed that they have a certain part of their body, legs or eyes, so they have to find a way to eliminate it.
A rare genetic disorder that causes the patient to become swollen if there is an allergic reaction is causing a headache for scientists who have not found an explanation…
The phenomenon thought only in the film turned out to be real. The young girl is sometimes a pretty, gentle girl, sometimes a 5 year old child.
At a height of 2.13m at the age of 19, Rumeysa Gelgi currently holds the record for the tallest girl on the planet. However, this appearance makes 9X's life difficult.
Liver tuberculosis in Wilson's disease, 20-year-old female student in Dong Thap has to be treated for more than 3 years at Cho Ray Hospital.
Experts from the United States proved that Vladimir Lenin suffered from a rare genetic disease that caused rapid death.
After about one week of diarrhea, male patients with weakened limbs, loss of tendon reflexes, doctors identified Guillain - Barré syndrome, ie nerve root inflammation.
Harper Foy, in Washington, USA is believed to be the youngest person in the world with a disease that makes skin grow 7-10 times faster than normal people.
Losing the ability to use limbs since childhood, Rahma Haruna, 19, (Nigeria), is placed in a plastic basin for transportation and living.
Lilli-Mai Queen, a 5-year-old girl from Lancaster, England, suffers from a rare syndrome called Beckwith Wiedemann, making her right half body grow faster than the left…